We meet quarterly for support group meetings in January, April, July and October on the 3rd Thursday of the month from 4-6 pm at one of the buildings at the University of Pennsylvania’s campus. New patients might not be able to attend right away, but perhaps their spouse, caregiver, friend, or a family member might want to attend. We invite EVERYONE to come meet us and share the love and support we give to each other! Our meetings are well attended and it is the perfect time to meet many of us, including our care team of doctors, nurses, and other medical professionals who attend as guest speakers sharing invaluable information and support!